Update from John Adler, Chief Executive

Last week we received notification from NHS England that they would be delaying the start of the public consultation until the New Year . This has been confirmed in Will Huxter’s blog published on Thursday which can be viewed on https://www.england.nhs.uk/2016/11/will-huxter-18/.

Mr Huxter has given the reason for the delay as the need to provide more time for those Trusts who don’t currently meet the standards in full to ‘further refine and develop their plans for future service delivery.’

We welcome the opportunity to continue the dialogue in support of our submission and plans.  In that vein, we received another letter last week from NHS England which clarified some of the questions we have raised previously and asked us a number more to which we will respond this week.  It is this degree of information sharing that is obviously necessary but time consuming and has been cited as one of the reasons for the delay in consultation.

Notwithstanding the delay, we will continue to prepare for the forthcoming consultation and ensure all of our stakeholders are fully engaged and given every opportunity to contribute to the campaign.

We will be holding another stakeholder meeting on the 15th December 18.00pm at Glenfield Hospital and invitations have been sent out to all stakeholders who have expressed a desire to attend. If you would like to be invited please let our campaign manager Alison Poole know on  alison.poole@uhl-tr.nhs.uk

We were pleased to welcome Cllr Rory Palmer (Leicester City Deputy Mayor) when he made the time to visit the East Midlands Congenital Heart Centre (EMCHC) unit on Thursday 24th November. He wanted to meet staff and hear how they are managing to maintain excellent care with the continued uncertainty surrounding the service. He visited the new ward 30, Outpatients and PICU. Our staff were grateful for his assurance of the Council’s continued support for the campaign and the sweets he left for them to enjoy!

Our week was made very special by the success of the 2016 British Congenital Cardiac Association (BCCA) Annual Conference hosted by our EMCHC team at the East Midlands Conference centre in Nottingham. It is ironic that despite the skill and expertise clearly demonstrated at the event, and the respect shown to our fantastic team, we continue to have the cloud of uncertainty hanging over us from the review process.  I would like to take this opportunity to personally thank every member of the EMCHC team and to reiterate our resolve to maintain business as usual, alongside supporting the further development of our service.


So far over 41,425 people from all over the country have signed our online petition, with 47,000 more signing the offline petition! We really need a concerted effort over the next few weeks to drive awareness of the petition before the public consultation. If every person who signed the petition shared the link with 10 friends and asked them to do the same we would rapidly start to see both petitions reaching the magic 100,000 mark. Thank you to everyone who has signed the petition, but please keep sharing and keep up the signatures! https://petition.parliament.uk/petitions/160455.

Thank you to the Charnwood Constituency Labour Party who rallied around Leicestershire at the weekend collecting signatures for our petition. In Glenfield, 277 signatures were collected within two hours, Gorse Culvert – 60 signatures, Thurmaston – 200 signatures and in Loughborough town centre, around 750 signatures were collected within five hours. A very successful day! Thank you again to everyone who took time out of their day to be there.


labour-party-collecting-petition-signatures  labour-party-2-collecting-signatures

 For those without internet access, our team of volunteers have been collecting support at public events and in reception at Glenfield and from December 1st in the Royal Infirmary Hospital. We are still seeking willing volunteers, so if you are able to give some time, please contact Shirley Barnes on: shirleyb60@virginmedia.com.

If you require copies of our posters and postcards to share with your friends and family, please contact Alison.poole@uhl-tr.nhs.uk for some copies.

Case Studies

With the public consultation imminent we have been finding ways of sharing the case studies we have been compiling over the past few months.  We are planning to share a short case study like the one below  every day of the public consultation. This means we need 98 short summaries. If you would like to be involved and share your story please email: communications@uhl-tr.nhs.uk, all we need is a picture and a few words. We want to feature Adult and Paediatric surgery patients, as well as ECMO and PICU patients