For six weeks prior to a general election the Trust is required to ensure all communications are limited to those necessary for patient safety, quality and operational delivery purposes. This is to ensure that we are not seen to be providing any political bias. This ‘purdah’ period means that our planned meeting with NHS England on the 18 May was postponed until after the election, and we will also be suspending communications in relation to the Congenital Heart Disease consultation during this period. We will also be cancelling all stakeholder meetings until after the election, therefore the meeting next week (Thursday 25 May) at Glenfield, will be cancelled.

We will of course be working behind the scenes to prepare the Trust’s formal response to the consultation questions.  At the last count over 2500 responses have been received across England of which 1800 were from the East Midlands. We are delighted at the strength of response from our supporters, and please continue to spread the word and encourage everyone to have their say. Information and support can be found on: http://www.eastmidlandscongenitalheart.nhs.uk/consultation/

Glenfield Congenital Heart Team present at annual conference in Leicester

 Today and tomorrow (19 and 20 May) the congenital heart service team at Glenfield will be hosting the 2017 European Congenital Heart Surgeons Association (ECHSA) Annual Conference at the Grand Hotel in Leicester.

The two day event will bring together eminent congenital heart disease clinicians from the East Midlands, the UK and overseas, who will deliver a number of presentations and workshops, as well as having the opportunity to exchange experiences.

This year’s annual conference, which celebrates its 25th Anniversary, has been organised by EMCHC’s own Consultant Cardiothoracic Surgeon, Professor Antonio Corno, who will present a number of sessions across the two day event. Other members of the congenital heart service team will also present a number of talks, including Consultant Cardiothoracic Surgeon, Simone Speggiorin, Consultant Paediatrician, Sanjiv Nichani and Director of ECMO, Chris Harvey. 

This is the second time the East Midlands Congenital Heart Centre (EMCHC) have been chosen to host such a prestigious congenital heart disease conference in the last 12 months!

 Case Studies

Our story this week was from little Freddie who was diagnosed with Left Atrial Isomerism at his mum’s 20 weeks scan. His parents praised our Consultant Paediatric Cardiologist, Dr Bu’Lock for taking care of their son from the very beginning. Freddie’s mother said: “Without Glenfield my little man wouldn’t be the little boy he is today.” As always, if you have a story to share with us, please email the usual address: communications@uhl-tr.nhs.uk

 In the news

Finally, below is a roundup of all the media coverage we have received over the last week:

Wednesday 26 April  

Loughborough Echo

Loughborough meeting about Glenfield (Hard copy available from Communications Team)

Campaigners who are trying to save Glenfield Children’s Heart Unit have organised a meeting in Loughborough to help people engage with the public consultation taking place on the future of the unit.

Friday 28 April

HSJ

Exclusive: Delay to major national hospital reconfiguration (Hard copy available from Communications Team)

A controversial decision on the future of congenital heart surgery across England has been further delayed because of the snap general election, HSJ can reveal. Consultation over the closure of three units in London, Leicester and Manchester had been due to end on 5 June following public events staged by NHS England next month.

Saturday 29 April

Meeting on heart centre postponed (hard copy available from Communications Office)

A public consultation meeting about the future of Glenfield Hospital has been postponed.  Campaigners were urging supporters of the unit to attend as meeting on May 10.  However the meeting has been delayed until after the General Election.

Wednesday 3 May

Leicester Mercury

Top heart surgeon is quitting city (hard copy available from Communications Office)

A top children’s heart surgeon is set to leave Leicester’s Hospitals.  Simone Speggiorin, clinical lead for paediatric cardiac surgery at Glenfield Hospital, has been offered a new job at the Evelina Children’s Hospital, in London.

Wednesday 10 May 2017

Hinckley Times

Hundreds speak out on heart care (hard copy available from Communications Office)

Hundreds of people have already voiced support for Glenfield’s heart unit in a public consultation on the future of the specialist cardiac services. Some of the 1,200 responses received by NHS England in the first few weeks have been from people backing the continuation of care from the East Midlands Congenital Centre.

Wednesday 17 May 2017

Spalding Today

Tilly is a queen of hearts for family charity and youngsters

Spalding-based property negotiator Tilly Milverton (21) is the woman with the golden heart after raising more than £2,000 for a medical charity. Tilly, of Boston, who completed 16 endurance events in ten months last year presented a cheque for £2,025 to Gill Tansey of East Midlands congenital heart defect (CHD) charity Keep the Beat at Glenfield Hospital, Leicester.

 


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