This week we have been working on a support guide for stakeholders for the NHS England consultation document and questions. In this guide we have expressed how we will be answering the questions and given some key points about each. We are not suggesting you should use our responses as such but we hope that this information will helpful when you have your say and answer the consultation questions.

The support guide can be found on our EMCHC website home page, and all our campaign literature will drive to the website to ensure all stakeholders have the opportunity to reference the support guide and the EMCHC quality report before completing the consultation questions.

We are aware that a large number of our supporters do not have access to the internet, or may require some help in responding online. We will therefore be providing regular support sessions in the reception of Glenfield Hospital and Balmoral reception at the Leicester Royal Infirmary (LRI) where we will have some iPads connected to the consultation Hub on the NHS England website, and will provide some able volunteers to provide assistance where needed. 

You are able however to send your response to the consultation questions in hard copy by post  if you would prefer to do it this way. We will have blank copies of the questions available in these support sessions with copies of the support guide for your information. Anyone who would like to be sent any of these documents directly please advise Alison Poole on: Alison.poole@uhl-tr.nhs.uk or 07595 769548

In order to provide this support we desperately need more volunteers; as you can imagine organising a rota to cover both venues is a big task. If anyone is able to offer some time can you please contact Shirley Barnes: shirleyb60@virginmedia.com or call 07710 436141

We will now launch our social media campaign to encourage as many people as possible to have their say and we will be doing this in numerous ways. One of the most exciting is that a local business C S Ellis Holdings Ltd has painted its fleet of lorries with our campaign information – I think you will agree they look fantastic – the lorries will be driving around the East Midlands area as detailed below and we would encourage you (when safe to do so), to take a photo, let us know where you have seen them and tweet #saveourhearts or post them to our Facebook or Twitter pages (links below). Let’s get these pictures shared and retweeted as many times as possible to drive awareness across the whole region.

  • FN52 GBU – Stamford/Bourne/Peterborough/Market Deeping/Spalding/Holbeach area – All PE postcodes (1-12)
  • KX62 CXK – Oakham/Melton area – LE14/15
  • FJ64 VAH –  Coalville, Ashby de la Zouch, Glenfield LE65/ LE67
  • KX62 CXU – Enderby/Narborough/Scudamore Rd area – LE3/9/19
  • FJ64 VBN – Hinckley/Burbage/Barwell/Stoney Stanton area – LE9/10
  • FJ64 UNW – Thurmaston/Syston/Sileby/Loughborough – LE4/7/11/12

On Thursday, NHS England will be visiting Leicester to hold two consultation events. In the afternoon at 14.00 there will be a staff event at County Hall, Glenfield. There are still places available at this meeting and it is open to all UHL staff, and NHS staff from any of our network hospitals. Please let Alison Poole know if you would like to attend on Alison.poole@uhl-tr.nhs.uk 

On Thursday evening at 18.00 the public consultation event is being held at Leicester Tigers stadium. This event is fully booked. However NHS England are keen to know if you would like to attend but have not been able to secure a place. Please email: england.congenitalheart@nhs.net if there is sufficient demand NHS England will consider hosting another event. For those who have not been able to secure a place a number of supporters are meeting at the Tigers stadium to show support on the evening; please contact Steve Score on stevescore1@gmail.com

We have been assured by NHS England that all questions that have been sent in advance will be either answered in the meeting or at a later date on the NHS England website.

I look forward to seeing as many of you as possible at the consultation events this week and hearing your views on the proposals.

Regards,

John Adler

Chief Executive

Case studies

Keep a look out on our social media pages over the next few weeks where we will officially launch our ‘piktochart’ case studies. Thank you to our patients and families who have kindly shared their stories with us. As always, we’re looking for more case studies so if you haven’t already sent us your story, please email: communications@uhl-tr.nhs.uk with a picture and a short story. We want to feature both Adult and Paediatric surgery patients, as well as ECMO and PICU patients.

 Children’s hearts centre supporters want bigger room at NHS England event (Skip to 1:09:40)

Alison Poole, Project Manager for the East Midlands Congenital Heart Centre, spoke to Martin Ballard about the concern for the limited number of spaces available at a public information event being held by NHS England to explain their decision to close the Children’s Heart Centre at Glenfield.

The Lincolnite

Lincoln mum on mission to give something back to heart charity which supported premature daughter

A Lincoln mum is raising money for a heart charity after her daughter needed lifesaving surgery when she was born three months premature. Jessica Sampson’s daughter, LylaRose was born three months premature in November 2014. On February 28, 2017, LylaRose had a device fitted to her heart at Glenfield Hospital to fix a condition call Patent Ductus Arteriosus, which causes abnormal blood flow between two of the major arteries connected to the heart.

Melton Times

MP urges residents to voice views on unit (hard copy available from Communications Office)

Melton and Rutland MP Sir Alan Duncan has urged residents to contribute to the consultation process into proposals to close the children’s heart unit at Glenfield Hospital in Leicester. Comments can be made about the plans for 16 weeks up to Monday 5th June. Reflecting on the proposals made by NHS England, Mr Duncan said: “I can’t see the logic of this decision and hope people express their views in the consultation.”

One public meeting to discuss heart unit (hard copy available from Communications Office)

Organisers of the campaign to keep the Glenfield Heart Unit open have voiced their dismay that only one public meeting will be held as part of the consultation process. It is scheduled for 9th March at the Leicester Tigers RFC but there will only be room for less than 100 members of the public. Save Glenfield Children’s Heart Centre plans to protest outside the meeting for an hour before it starts at 6.00pm.

Friday 3 March

The Guardian

Why is this children’s heart unit facing closure? A day on the NHS frontline – live updates

The Royal Brompton Hospital’s Heart Centre is among the best in the country, so why is it earmarked for closure? We spend a day with patients and staff to try to understand the vexed questions at the heart of the government’s planned NHS reforms. Today, every unit is safe, says Prof Huon Gray, the NHS National Clinical Director for Heart Disease, who argues that the closures at Brompton and in Leicester are necessary because the ambition is “to future-proof the service” by making it as good as it can be.

 

 


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